I was recently in Northern Uganda (Odek) where I spent some time with the victims of Nodding Disease, and their parents / guardians or only surviving family members. It was a period, and experience in my life I will always hold close to my heart, and could never forget. The faces of these children still haunt me to this day. I hope through my work with children around the world sick or not, that I have been able to make them smile, cheer them up, make them giggle and laugh through their suffering… But this was a different story altogether. The suffering, the pain, the anguish and isolation of these poor, sick and neglected people, is a sad story that has its roots buried far beyond the first outbreak of Nodding Disease.
This young boy has been severely disfigured by Nodding Disease. He is 12 years old yet looks about 6, he cannot speak and he is the last surviving son in his family. 4 died of Nodding Disease and one was abducted by the LRA and has never returned. His father does not know if he is dead or alive.
The sad truth is that the government of Uganda does not really care about the poor young Acholi children in the North who are suffering, then dying of this shocking Nodding disease. When I was in Uganda a couple of months ago, there was so much local media showing President Museveni out in health clinics and setting up facilities for nodding disease victims and so forth. That was while I was in the same country. Actually! During my time in Northern Uganda; the President just flew in for many media opportunities. Speaking about these issues, I would say I have spent more time in Northern Uganda than the President himself. I would have spent more time on Acholi soil, speaking Acholi (a little, but a little more than President Museveni), working with them; learning; sharing; caring; teaching; drinking; eating; laughing; living; crying with them… and establishing life-long friends with them! Oh, my heart goes out to my dear Acholi friends from the North!
